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# DEBRA UK: The butterfly skin charity

> DEBRA is a national charity and patient support organisation for people living with epidermolysis bullosa \(EB\), also known as Butterfly Skin\.

Generated by Yoast SEO v27.0, this is an llms.txt file, meant for consumption by LLMs.

## Pages
- [About DEBRA UK – The leading EB charity](https://www.debra.org.uk/get-support/eb-support-and-resources/about-eb-debra-uk/about-debra-uk-eb-charity/)
- [Contact us](https://www.debra.org.uk/contact-us/)
- [Website terms and conditions](https://www.debra.org.uk/get-support/eb-support-and-resources/about-eb-debra-uk/about-debra-uk-eb-charity/our-policies-and-reports/terms-and-conditions/)
- [Privacy Policy](https://www.debra.org.uk/privacy-policy/)
- [Shop Finder](https://www.debra.org.uk/shop-finder/)
- [Epidermolysis bullosa \(EB\): symptoms, treatment, and care](https://www.debra.org.uk/get-support/eb-support-and-resources/epidermolysis-bullosa-eb/)
- [Our research](https://www.debra.org.uk/eb-research/)
- [EB support and resources](https://www.debra.org.uk/get-support/eb-support-and-resources/)
- [Treatments \& management](https://www.debra.org.uk/get-support/eb-support-and-resources/treatments-management/)
- [Our EB research projects](https://www.debra.org.uk/eb-research/eb-research-projects/)
- [Furniture collection](https://www.debra.org.uk/shop/furniture-collection/)
- [Healthcare professionals](https://www.debra.org.uk/get-support/eb-support-and-resources/eb-professionals/)

## Posts
- [DEBRA Butterfly Ball returns with a night of Gatsby glamour and EB impact](https://www.debra.org.uk/debra-butterfly-ball-returns-with-a-night-of-gatsby-glamour-and-eb-impact/)
- [Climbing for a cure: DEBRA UK team depart for Kilimanjaro Trek\!](https://www.debra.org.uk/kilimanjaro-trek-2025/)
- [DEBRA UK hosts inaugural Global EB Taskforce at Hever Castle to shape 10‑year strategy](https://www.debra.org.uk/global-eb-taskforce/)
- [Fergus Stewart appointed as DEBRA Ambassador](https://www.debra.org.uk/fergus-stewart-appointed-as-debra-ambassador/)
- [DEBRA publishes 2025 Annual Report and ESG Report highlighting major progress for the EB community](https://www.debra.org.uk/2025-annual-report-and-esg-report/)

## Products
- [Members Connect: Northern Ireland](https://www.debra.org.uk/product/members-connect-northern-ireland/): \<p\>\<b\>We’re looking at hosting an event in \<strong\>Northern Ireland\</strong\>, and it would be wonderful to bring our EB community together there\. If this sounds like something you would be interested in attending this year, please register your interest below\! If we have enough interest, we’ll move ahead with finalising details\. \</b\>\</p\>
\<p\>\<strong\>Exact date and details to be confirmed \</strong\>\</p\>
- [Parallel Windsor](https://www.debra.org.uk/product/parallel-windsor/): \<p\>Last year DEBRA members had a fantastic time attending \<strong\>\<a href="https://gbr01\.safelinks\.protection\.outlook\.com/?url=https%3A%2F%2Fwww\.parallellifestyle\.com%2Fwindsor2026\&data=05%7C02%7CEmily\.Harding%40debra\.org\.uk%7Cd2aa37045d49491ed80608de7dee3710%7Ccd14ab2ace244f298c693c78baa50e5e%7C0%7C0%7C639086659256381687%7CUnknown%7CTWFpbGZsb3d8eyJFbXB0eU1hcGkiOnRydWUsIlYiOiIwLjAuMDAwMCIsIlAiOiJXaW4zMiIsIkFOIjoiTWFpbCIsIldUIjoyfQ%3D%3D%7C0%7C%7C%7C\&sdata=yjxFTJPXTojR7IbhaiOYDqpbQWDJnNg2TAbSQ9cgwcY%3D\&reserved=0"\>Parallel Windsor\. \</a\>\</strong\> This is an inclusive festival in Windsor Great Park offering a variety of challenge events and fun activities for people of all ages, abilities, and health conditions\. \<b\>If this sounds like something you would be interested in attending this year, please register your interest below\! If we have enough interest, we’ll move ahead with finalising details\. \</b\>\</p\>
\<p\> \</p\>
- [Members Connect: Norwich](https://www.debra.org.uk/product/norwich-member-connect/): \<p\>We’re looking at hosting an event in \<strong\>Norwich city centre this August\</strong\>, and it would be wonderful to bring our EB community together there\. Details are yet to be confirmed, but if this sounds like something you would be interested in, please register your interest\! \<b\> If we have enough interest, we’ll move ahead with finalising details\. \</b\>\</p\>
\<p\>\<strong\>Actual date is to be confirmed\</strong\>\</p\>
- [Members Connect: Bristol](https://www.debra.org.uk/product/members-connect-bristol/): \<p\>\<b\>We’re looking at hosting an event in \<strong\>Bristol in November\</strong\>, and it would be wonderful to bring our EB community together there\. If this sounds like something you would be interested in attending this year, please register your interest below\! If we have enough interest, we’ll move ahead with finalising details\. \</b\>\</p\>
\<p\>\<strong\>Exact date and details to be confirmed \</strong\>\</p\>
- [Skydive for DEBRA \(available all year\)](https://www.debra.org.uk/product/skydive-for-debra/): \<p style="text\-align: left"\>Take on an exhilarating tandem skydive for DEBRA and BE the difference for EB\. Choose your date and location and experience the thrill of a skydive\!\</p\>
\<p\> \</p\>
\<p style="text\-align: center"\>\<span class="rte\-field\_\_button" style="text\-align: center"\>\<a href="https://booking\.skylineevents\.co\.uk/book/ynk76rkp?charity=8840\&referrer=charity\&siteid=50" target="\_blank" rel="noopener"\>Sign up today\!\</a\>\</span\>\</p\>

## Shops
- [Stockbridge](https://www.debra.org.uk/charity-shop/stockbridge/)
- [Bearwood](https://www.debra.org.uk/charity-shop/bearwood/)
- [Glenrothes](https://www.debra.org.uk/charity-shop/glenrothes/)
- [Holmfirth](https://www.debra.org.uk/charity-shop/holmfirth/)
- [Sudbury](https://www.debra.org.uk/charity-shop/sudbury/)

## Categories
- [News](https://www.debra.org.uk/category/news/)
- [Blog](https://www.debra.org.uk/category/blog/)
- [EB stories](https://www.debra.org.uk/category/blog/eb-stories/)
- [Research blog](https://www.debra.org.uk/category/blog/research-blog/)
- [Research news](https://www.debra.org.uk/category/news/research-news/)

## Tags
- [DEB](https://www.debra.org.uk/tag/deb/)
- [JEB](https://www.debra.org.uk/tag/jeb/)
- [Fundraising](https://www.debra.org.uk/tag/fundraising/)
- [Adulthood](https://www.debra.org.uk/tag/adulthood/)
- [Childhood](https://www.debra.org.uk/tag/childhood/)

## Event Types
- [Runs \& Challenges](https://www.debra.org.uk/our-events/runs-challenges/)
- [Major Events](https://www.debra.org.uk/our-events/major-events/)
- [DEBRA Members Events](https://www.debra.org.uk/our-events/debra-members-events/)
- [DEBRA UK Golf Society](https://www.debra.org.uk/our-events/debra-golf-society/)
- [Events and Challenges in Scotland](https://www.debra.org.uk/our-events/events-challenges-scotland/)

## Optional
- [Sitemap index](https://www.debra.org.uk/sitemap_index.xml)